Li-Fraumeni Syndrome

Li-Fraumeni Syndrome. Yeah, I hadn’t heard of it before, either. It’s a hereditary disorder that greatly increases the risk of developing multiple types of cancer. It’s also pretty damn rare, with about 400 reported families diagnosed since it was first characterized in 1969. (To be sure, its actual population incidence is unknown because it is widely screened.) That’s no solace to those who actually are diagnosed because it’s kind of a big deal.

Today, I attended a fundraiser for the Li-Fraumeni Syndrome Association. A friend sits on the board, because a close friend of hers is afflicted. That’s enough for me to want to contribute to advocacy and a cure.

[Edit: This post was in draft yesterday, but apparently never posted. Sorry about that.]

{ 0 comments… add one }

Leave a Comment

sign up for my free pdf on

How you can raise your civic engagement one civic act at a time

Don’t feel helpless or that you don’t have enough time. Civic engagement starts with a single act. I’m here to help you focus on what you believe in, commit to a plan of action and take that first act.

Sign up for my free PDF on “How you can raise your civic engagement with one civic act.”

give your support

Can you help me inspire others to make one civic act? Support me on Patreon and I’ll give you special perks and a chance to chime in on the direction of One Civic Act.